
Making Connections for NF1: Online international NF1 patient registry
It can be challenging to gather information from enough people for neurofibromatosis type 1 research. Having a large number of…
It can be challenging to gather information from enough people for neurofibromatosis type 1 research. Having a large number of…
NF Midwest C.A.R.E.S. If you read our spring 2014 newsletter or our annual review you may have noticed that we…
Having one of the neurofibromatoses (NF1, NF2, Schwannomatosis) is a lifelong challenge. Building a foundation of strength and knowledge; and…
One of the presentations at NF Midwest’s annual family symposium held on October 12, 2013, was by Amanda Bergner from…
This Sunday, November 10th is the Inaugural Naperville Marathon in Illinois. NF Midwest is lucky enough to have 18 runners in…
At NF Midwest’s annual family symposium held on October 12, 2013, Dr. Joseph Kissil from the Scripps Institute in Florida…
Kids with NF have the opportunity to attend a one week camp in July called “Camp New Friends”. The wonderful…
It can be difficult for general care physicians and even specialists to stay informed about every disorder they may encounter….
A new edition (3rd) of the booklet Understanding Neurofibromatosis is now available online for free or by mail for $5.00. It is…
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