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What to do if your personal physician doesn’t know a lot about NF?

We recently invited Dr. Jason Marker, a primary care physician, to share his thoughts on “what to do if your personal physician doesn’t know a lot about NF”.

Dr. Marker is a Family Medicine physician in private practice in Wyatt, IN.  He and his wife have a high school daughter with NF-1.  In his practice he takes care of patients with neurologic conditions including NF and he has lectured to medical students and Family Medicine residents-in-training about Neurofibromatosis, both in the U.S. and at symposia in Ecuador and Haiti.  Dr. Marker does a lot of education to family physicians about how to deliver high-quality care to complex patients and about the importance of robust doctor-patient communication.

Dr. Marker has witnessed the frustrations of NF patients who sometimes feel that their personal physicians don’t know enough about NF. Considering his unique position in Family Medicine and having an older child with NF we welcome his perspective.

Read the Article

Note: Dr. Marker may be speaking at our NF Midwest Symposium and iNFo fair on November 11th so mark your calendars now to be sure that you are able to take advantage of his perspective more fully!

 

Comments (2)

  • Very useful information so thank you. In my case I feel I have NO complications with my nf1 that I’ve had since the start of puberty, I’m now 46+. I’m not even sure if my new primary is experienced with the condition. I have always felt I have a mild case and I’m very lucky with my health.
    I am aware that complications might occur later in my life.

  • I hate to say that i pot to help with some of the pain i get can’t take pain
    Pill because it makes me feel sick so when I get home only o well life goes on

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