42 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

Gastrointestinal Tumors in NF Type 1

Posted By Paul J LeBlanc, RN, BS, CCM | On March 11th, 2020

Dr. James Tonsgard, MD, of the University of Chicago, graciously contributed this article. The article is an overview of Gastrointestinal Stromal Tumors (GISTs), which are one of the most common tumors in the GI tract. They can occur in the stomach, small intestine and large intestine. These tumors can produce bleeding which the patient can discover in frank bleeding or result in more subtle findings such as anemia or low blood count. These tumors can produce abdominal pain, vomiting and in some instances, bowel obstruction, which would result in requiring surgery.

LINK TO GIST ARTICLE