This was a small study done in the United Kingdom that compared 75 children with neurofibromatosis type 1 to their 16 unaffected siblings to determine if fatigue was more prevalent in children with NF1. The study shows a presence of perceived fatigue in children and young adults with NF1. This is just one study, but it demonstrates that more research is needed to look at fatigue and NF1 and what factors might be contributing to the fatigue.
Note: This does not mean all children with NF demonstrate increased fatigue.
Thank you to everyone who helped raise awareness for neurofibromatosis (NF) during May! This year, NF Midwest families and advocates helped bring NF Awareness Month into communities across our six-state region. Through state and local proclamations, more people had the opportunity to learn about neurofibromatosis and recognize the families who live with NF every day. ... Read More
Everyday Skills in NF1: What Parents Can Watch for and How to Help A practical resource for parents and caregivers from NF Midwest Parent Conversations Parents and caregivers affected by NF carry a lot of questions, and that’s normal. Some are medical. Some are emotional. And many are practical: That is why NF Midwest created NF Parent Conversations, a welcoming online... Read More
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