Participate in an NF Quality of Life Survey

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Neurofibromatosis Midwest

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Participate in an NF Quality of Life Survey

Posted By Diana Haberkamp | On February 5th, 2016

Researchers at Indiana University are creating a survey on how having NF1 affects people’s health and well-being. This tool will become an important part of testing potential treatments for NF1.

Who can participate?

Young Adults with NF1 (18-25y)

Children with NF1 (5-17y) (with parent permission)

Parents of children with NF1 (5-17y)

What will I be asked to do?

We are asking for about 360 people to participate in field testing. To take part in field testing, you are required to answer surveys about NF1, how it affects your health and your general well-being. You can do the surveys at the clinic or can mail them back.

How do I find out more?

Contact Dr. Kavitha Nutakki, MBBS, MPH

Health Information and Translational Sciences

Children’s Health Services Research 1020

410 W. 10th St.

Indianapolis, IN 46202

Phone: (317) 278-0534

BROCHURE