Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
View our upcoming events and join us in making NF Midwest great!
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29

Matching Gifts And Volunteer Grants

Your company may match your generosity!

Matching Gifts

Are you interested in growing your gifts to NF Midwest—doubling, perhaps even tripling them? Corporate matching gift programs offer an easy way to do this.

Many companies will match their employees’ gifts, often up to $3,000 per year. This annual program involves no cost for employees, and neurofibromatosis can benefit!

We receive matching gifts quite frequently because our donors take the time to see if their company matches and to go through the required process so that NF Midwest will receive the match. Please check with your HR department to find out whether your company is a matching gift sponsor.

Arranging for a matching gift is easy:

Get a copy of your matching gift form from your company’s HR department and email it to NF Midwest or your company may have an easier automated procedure.
NF Midwest will verify your gift and return the matching gift form directly to your company’s designated matching partner.
NF Midwest then will receive a check from your employer matching your gift.
Already given? Most matching companies will honor gifts given within the current calendar year.

Volunteer Grant Programs

Volunteer grant programs are corporate giving programs in which companies provide monetary donations to organizations where employees volunteer regularly. Your company (or one of your friends) may have a program. For instance, Kohl’s will give $500 for pre-approved events if five or more employees volunteer from one store.

People Are Talking

NF Midwest has proven to be a great resource and support for us as we make our way through this maze. They provided valuable information that we were able to share with our own families and friends. They were instrumental in helping to educate the teachers at [the] Elementary School where [my granddaughter] would be attending. When we held our bowling event last Saturday the local chapter was in attendance to share information and lend their support.

- Mary

Find NF Care

Get the best care! Find an experienced NF doctor/clinic in the NF Midwest region.

Be iNFormed

Knowledge is power! Learn and understand as much as possible about neurofibromatosis.

Community Support

Don’t fight alone! Meet others in the NF community to learn and share experiences.

Donate

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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.