Celebrating 35 Years


What are the symptoms of NF1?

The symptoms and complications of neurofibromatosis type 1 vary widely from patient to patient. However, beginning in early childhood, most…

How do people get NF1?

Approximately half (50%) of all people with neurofibromatosis type 1 inherit the disorder. It is inherited in an autosomal dominant…

How do doctors diagnose NF1?

Most of the time, NF1 is diagnosed by its physical symptoms (tumors or café- au-lait spots), or by a family…

How is NF1 treated?

There is no cure or treatment for NF1. Some tumors may be removed, but others, such as plexiforms may be…

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