Celebrating 35 Years

Be iNFormed Articles

Whole Gene Deletion in NF1

NF Midwest
By Heather Radtke, MS, CGC, Children’s Hospital of Wisconsin

Written for NF Midwest by Heather Radtke, MS, CGC Neurofibromatosis type 1 (NF1) is a genetic condition caused by mutations…

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Pain in Neurofibromatosis Type 1

National Cancer Institute, National Institutes of Health
By Staci Martin Peron, PhD and Andrea Baldwin, CRNP

Pain in NF1 One of most common challenges for individuals with NF1 is living with chronic pain.  By definition, chronic…

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Transitioning to Adult Care

NF Midwest Symposium | 2014
By Dr. Parag Shah, Lurie Children’s Hospital

At our annual symposium on October 25, 2014 Dr. Parag Shah of Lurie Children’s Hospital and LaRabida Children’s Hospital spoke on…

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