Information for Medical Professionals
NF Midwest
It can be difficult for general care physicians and even specialists to stay informed about every disorder they may encounter….
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It can be difficult for general care physicians and even specialists to stay informed about every disorder they may encounter….
View ArticleNational Humane Genome Research Institute | 2016
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Best place to start to find insurance and health care coverage.
View ArticleNational Institutes of Health
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Download ArticleNF Network | 2012
This recording of the Update on Schwannomatosis webinar that was sponsored by the Neurofibromatosis Network on Dec. 19, 2012. The presenter was Dr….
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Johns Hopkins University
| 2012
By Amanda Bergner, MS CGC
People who themselves have been diagnosed with NF1, NF2 and schwannomatosis, or who have a child with one of these…
View ArticleISD | 2012
A consortium of medical institutions is collecting limited information on schwannomatosis patients. This includes their symptoms, their management and medication,…
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NF Midwest
| 2015
By Diana Haberkamp, reviewed by Eva Dombi, MD
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