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NF Midwest Articles

NF1 Genetics Study

Stanford University, in collaboration with Johns Hopkins University and The University of California San Francisco (UCSF) | 2023
By Kavita Sarin, MD, PhD and Carlos Romo, MD

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NF California


Or mission: Create a community of support for individuals affected by Neurofibromatosis and their families, through education, patient advocacy, collations,…

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Neurofibromatosis Network


Our Mission: “Is to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, providing outreach through education…

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NF North Central


Our mission: Working to authentically educate, advocate, counsel, support and fund research initiatives benefitting those impacted by Neurofibromatosis Serving: Minnesota, Wisconsin,…

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NF Michigan


Our mission: Enhancing the quality of life for those affected by Neurofibromatosis in Michigan. Serving Ohio and Michigan

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NF Central Plains


The mission of NF Central Plains is to create a community of support for those affected by NF through education,…

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NF Northeast


Our Mission: To bring hope to those affected by neurofibromatosis and allied disorders. Serving: Connecticut, Massuchusetts, Maine, New Hampshire, New York,…

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