43 Years of Care and Ensuring No One Fights Alone!

Meet the MEKs: A Power Hour 4NF

Learn about both MEK inhibitors, GOMEKLI and Koselugo, used to treat plexiform neurofibromas in NF1 with Dr. Shawn Damodharan from...

Meet MEK Users: A Power Hour 4NF

Thinking about starting a MEK inhibitor like KOSELUGO or GOMEKLI for yourself or your child? Already on one and want...

NF1 Family Symposium at Lurie Children’s Hospital

Ann & Robert H Lurie Children's Hospital 225 E Chicago Ave, Chicago, Illinois

Topics:Basics of NF1, Research Updates, Genetic Counseling in NF, and Neuropsychology, IEP's, and Social Work in NF.

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