Featured
Clinical Trials for Treating Pain in Schwannomatosis
Join us to learn about current research on how best to treat pain for people with non-NF2 related schwannomatosis. We'll...
Join us to learn about current research on how best to treat pain for people with non-NF2 related schwannomatosis. We'll...
Please refer to the flyer for information. Presented by Alexion Pharmaceuticals, Inc.
Learn about both MEK inhibitors, GOMEKLI and Koselugo, used to treat plexiform neurofibromas in NF1 with Dr. Shawn Damodharan from...
Thinking about starting a MEK inhibitor like KOSELUGO or GOMEKLI for yourself or your child? Already on one and want...
Managing NF1 PN can be complex!Hear from a Patient Education Manager to learn more about neurofibromatosis type 1 with plexiform...
Topics:Basics of NF1, Research Updates, Genetic Counseling in NF, and Neuropsychology, IEP's, and Social Work in NF.
Managing NF1 PN can be complex!Hear from a Patient Education Manager to learn more about neurofibromatosis type 1 with plexiform...
The theme this year is being "Be Proactive, Be Informed, Be Heard!" Join us for an all-day iNFo Fair in...
Joe Booe, Patient Education Manager from Alexion Pharmaceuticals, will share information about transitioning to adult care. Objectives: This is a virtual...
Gina Friesl, Patient Education Manager from Alexion Pharmaceuticals, will share information about Navigating Stress and Cultivating Wellness. Objectives: This is a...
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