43 Years of Care and Ensuring No One Fights Alone!

Caregivers Need Care, Too

Free Educational Event At Maggiano’s Little Italy240 Oakbrook CenterOak Brook, Illinois 60523 Managing NF1 PN can be complex! At Alexion,...

FREE

Monthly NF Midwest Parent Group Chat

Designed for parents with a child of any age with NF, this virtual chat provides a dedicated space for sharing...

Free

Meet Camp NF

Learn more about Camp NF (formerly Camp New Friends) at an online meeting on Tuesday, January 28th. Camp NF is...

Meet the MEKs: A Power Hour 4NF

Learn about both MEK inhibitors, GOMEKLI and Koselugo, used to treat plexiform neurofibromas in NF1 with Dr. Shawn Damodharan from...

Meet MEK Users: A Power Hour 4NF

Thinking about starting a MEK inhibitor like KOSELUGO or GOMEKLI for yourself or your child? Already on one and want...

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