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2024 iNFo Fair
This Year's Focus Will Be On Research! Join us for an all-day iNFo Fair in Naperville, Illinois, on Saturday, October...
This Year's Focus Will Be On Research! Join us for an all-day iNFo Fair in Naperville, Illinois, on Saturday, October...
Learn more about Camp NF (formerly Camp New Friends) at an online meeting on Tuesday, January 28th. Camp NF is...
Managing NF1 PN can be complex!Hear from a Patient Education Manager to learn more about neurofibromatosis type 1 with plexiform...
Managing NF1 PN can be complex!Hear from a Patient Education Manager to learn more about neurofibromatosis type 1 with plexiform...
Join us to learn about current research on how best to treat pain for people with non-NF2 related schwannomatosis. We'll...
Please refer to the flyer for information. Presented by Alexion Pharmaceuticals, Inc.
Learn about both MEK inhibitors, GOMEKLI and Koselugo, used to treat plexiform neurofibromas in NF1 with Dr. Shawn Damodharan from...
Thinking about starting a MEK inhibitor like KOSELUGO or GOMEKLI for yourself or your child? Already on one and want...
Managing NF1 PN can be complex!Hear from a Patient Education Manager to learn more about neurofibromatosis type 1 with plexiform...
Topics:Basics of NF1, Research Updates, Genetic Counseling in NF, and Neuropsychology, IEP's, and Social Work in NF.
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