 
                    RAISE YOUR VOICE for Neurofibromatosis Research!
Now is the time to email YOUR members of the Senate and House of Representatives to ask for their support…
Read More 
                    Now is the time to email YOUR members of the Senate and House of Representatives to ask for their support…
Read More 
                    On February 6th and 7th, NF Midwest executive director Diana Haberkamp and others will be the visiting congressional offices of…
Read More 
                    Life can feel a bit like a juggling act some days. Too often, we find ourselves trying so hard to…
Read More 
                    THIS STUDY IS NOW FULL! Researchers at the Indiana University are currently seeking both parents and children with Neurofibromatosis Type…
Read More 
                    Who are the people most important to you? What things matter most to you? How do you want to be…
Read More 
                    We’re very excited to announce that we have awarded the Martin Ginsberg grant to support neurofibromatosis research at the University…
Read More 
                    Help researchers know what people with NF1- associated Plexiform Neurofibromas need! If you or your child has NF1 and a…
Read More 
                    Last week representatives of NF Midwest, along with members of other NF organizations, stormed Capitol Hill in Washington DC asking for support…
Read More 
                    Researchers at Indiana University are creating a survey on how having NF1 affects people’s health and well-being. This tool will become…
Read MoreOn February 8th and 9th, NF Midwest executive director Diana Haberkamp and others will be the visiting congressional offices of…
Read More
            © 2025 Neurofibromatosis Midwest - non profit 501(c)(t3). Site Map - Privacy Policy
            The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.