News/Blog

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Reproductive Options in NF1, NF2, and Schwannomatosis (Revised Article)

Posted By Paul J LeBlanc, RN, BS, CCM | On October 27th, 2020

People who themselves have been diagnosed with NF1, NF2 and Schwannomatosis, or who have a child with one of these…

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NF1 and Velopharyngeal Insufficiency

Posted By Paul J LeBlanc, RN, BS, CCM | On September 29th, 2020

Velopharyngeal insufficiency (VPI) is a resonance disorder that occurs during speech that results from the inability of the vellum (or…

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Sponsorship Shoutout: Hartigan’s Heroes and Romeoville Toyota

Posted By NF Midwest | On September 11th, 2020

Annie, the captain of Hartigan’s Heroes, heard about Toyota Cares from a neighbor. She reached out to her local Toyota…

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Fundraiser Feature : Jessica and Ellies Crew

Posted By NF Midwest | On September 4th, 2020

Let’s say hello to Jessica and her family! Her team, Ellie’s Crew, has been hard at work this year! Jessica…

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No Symposium and iNFo Fair in 2020

Posted By Diana Haberkamp | On September 1st, 2020

Due to the pandemic there will be NO NF Midwest Symposium and iNFo Fair this year. We may present short…

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Volunteer Spotlight : Tim E

Posted By NF Midwest | On July 10th, 2020

Meet Tim and Sue! Tim is one of our amazing, out of this world, extraordinary volunteers who heads up the…

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New Survey for Adults Neurofibromatosis or Schwannomatosis-Study CLOSED

Posted By NF Midwest | On June 22nd, 2020

THIS STUDY HAS BEEN CLOSED BY THE RESEARCHERS. THANK YOU ALL WHO PARTICIPATED!!!! Researchers are looking for adults with neurofibromatosis…

The Walk That Wasn’t

Posted By NF Midwest | On June 16th, 2020

Due to COVID our physical walks are cancelled but we’re still following our walk motto that “No One Fights Alone…

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Camp New Friends (NF) 2020 Will Be Virtual – UPDATE (6/23/20) with Registration cut-off

Posted By Paul J LeBlanc, RN, BS, CCM | On May 21st, 2020

UPDATE: PLEASE BE ADVISED OUR CUT-OFF FOR REGISTRATIONS IS JULY 6!!!! This date is the last date for registration information…

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Birdies for Charity 2020-UPDATE

Posted By NF Midwest | On May 19th, 2020

The 2020 event has ended, but we do this every year! Visit our Birdies for Charity Pledge form for more…

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