
Article: Study Shows More Fatigue in Neurofibromatosis Type 1
An interesting article was just published in the Journal of Paediatric and Child Health called “Perceived fatigue in children and…
Read MoreCheck out past blogs and news!
An interesting article was just published in the Journal of Paediatric and Child Health called “Perceived fatigue in children and…
Read MoreAs we look forward to amazing things in 2020 here’s a look back at our 2019 Top Ten in NF…
Read MoreIn 2019, NF Midwest awarded $1,000 academic scholarships to ten adults affected by neurofibromatosis or schwannomatosis. This is the fifth…
Read MoreMy name is Frank Buono and I am an Associate Research Professor at Yale School of Medicine. About a year…
Read MoreGreat News! The signing of the FY20 Defense Appropriations Act by the President today included $15 million in federal funding for the…
Read MoreThe Medical College of Wisconsin is looking for people with neurofibromatosis type 1 ages 14 to 30 to participate in…
Read MoreIn 2017, I became involved in a clinical research trial through Medical College of Wisconsin for benign cutaneous neurofibromas. Being…
Read MoreSera has a tumor that runs the length of her arm, all the way from her hand up to her…
Read MoreGiving Tuesday is December 3rd and we invite you to join us in coming together with your family, friends, co-workers,…
Read MoreAt NF Midwest’s Symposium and iNFo Fair last Saturday, November 9th, we were very fortunate to have Dr. Lu Le…
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