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NF Midwest News

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NF Midwest News/Blog

Great Steps Walk 4NF Missouri

About this Event Get ready for the First Annual Great Steps 4NF Walk in Columbia, Missouri! This community-based event is…

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Ify – A Face of NF

My husband and I had never heard of NF1 until May 2015 when our daughter, Ifunanya or Ify (pronounced “eff-ee”),…

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Jay – A Face of NF

Jay, 10 Mos. Our sweet baby boy Jay was diagnosed with NF Type 1 in May of 2018 at six…

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Another $15 Million for NF Research

This past February, NF Midwest brought volunteers to Washington DC to once again advocate for federal dollars for neurofibromatosis type…

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