A Routine Appointment That Changed Everything
When Chelsei brought her daughter Willow to the doctor for a diaper rash, she expected a quick visit and a…
Read More
Check out past blogs and news!
When Chelsei brought her daughter Willow to the doctor for a diaper rash, she expected a quick visit and a…
Read More
Each year, NF Midwest invests in young adults who are ready to speak up for the neurofibromatosis (NF) community. In…
Read More
A 2026 Update on Pain in NF1:Where We Have Been and Where We Are Going By Andrea Baldwin, CRNP and…
Read More
NF Midwest Scholarship Applications are now open! This is your sign to kick off the new year by pursuing your…
Read More
Because of Her, It Started. Because of You, It Continues. Dear Friend of NF Midwest, My journey started in 1976…
Read More
Walk4NF Naperville Details Get ready for the 24th Naperville Walk4NF – the grandaddy of them all supporting those affected by…
Read More
Walk4NF Columbia Details Get ready for the annual Columbia Walk4NF and support those with neurofibromatosis! Plus, NF Midwest is celebrating…
Read More
Walk4NF Indianapolis Details Get ready for the annual Indianapolis Walk4NF and support those with neurofibromatosis! Plus, NF Midwest is celebrating…
Read More
Walk4NF Madison Details Get ready for the annual Madison Walk4NF and support those with neurofibromatosis! Plus, NF Midwest is celebrating…
Read More
A 7-day, 6-night residential summer camp for children and teens living with Neurofibromatosis Type 1, Type 2, and Schwannomatosis. Medical…
Read More
Join us as Dr. Jacob Henderson presents a more in-depth look at Koselugo for the treatment of plexiform tumors in…
Read More
Listen and learn together, with experts and each other. The morning will include: Professionals attending the event include: Join us…
Read More
© 2026 Neurofibromatosis Midwest - non profit 501(c)(t3). Site Map - Privacy Policy
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.