Apply to the 2026 NF Young Adult Leadership Program
Are you a passionate young adult looking to make a difference in your community? The NF Young Adult Leadership Program…
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Check out past blogs and news!
Are you a passionate young adult looking to make a difference in your community? The NF Young Adult Leadership Program…
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Help Improve NF1 Care!Even Your Own Right Now!Participants Needed! I’m lucky to be able to go to an NF clinic,…
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Welcome to Champions of the Fall! This is an exciting new fundraising and awareness campaign from NF Midwest, running from October…
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I Just Joined the NF1-TED Study — and You Might Want To, Too I recently enrolled in the NF1 Tumor…
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Recordings from the 2024 iNFo Fair are now posted on NF Midwest’s YouTube channel youtube.com/@nfmidwest. There may still be more…
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If you or your child has NF1 and have not visited an NF Clinic Network (NFCN) clinic in the past…
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Three Months. One Champion. Rally Your Crew! NF Midwest has a new fall fundraising and awareness campaign kicking off on…
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A Collaboration with Children’s Tumor Foundation. The NSC ride is organized by the Evanston Bicycle Club. Join the NF Midwest…
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Participants 40+ May Earn $40. Florida State University College of Medicine is conducting a study to investigate cognitive patterns and…
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Parent’s May Earn $10. Kids 13-17 May Earn $210. Florida State University College of Medicine is conducting a study to…
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Are you a passionate young adult looking to make a difference? The NF Young Adult Leadership Program is your chance…
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The European Commission has granted conditional approval for EZMEKLY® (mirdametinib) to treat symptomatic, inoperable plexiform neurofibromas (PNs) in patients aged…
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Managing NF1 PN can be complex! Hear from a Patient Education Manager to learn more about neurofibromatosis type 1 with…
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