Building Community in Columbia: Kristi’s Leadership with NF Midwest
In Columbia, Missouri, the Walk for NF did not appear overnight. It grew because someone decided that people in her…
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Check out past blogs and news!
In Columbia, Missouri, the Walk for NF did not appear overnight. It grew because someone decided that people in her…
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When Audrey was born, there were no signs of neurofibromatosis. She was healthy and adorable. It wasn’t until she was about two months…
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When Chelsei brought her daughter Willow to the doctor for a diaper rash, she expected a quick visit and a…
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Each year, NF Midwest invests in young adults who are ready to speak up for the neurofibromatosis (NF) community. In…
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A 2026 Update on Pain in NF1:Where We Have Been and Where We Are Going By Andrea Baldwin, CRNP and…
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Join other adults living with NF1 for NF1 Peer Conversations—an online, supportive space to connect, share experiences, and talk openly…
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Join our Parent Community Conversations—a welcoming online space for parents and caregivers affected by NF to connect with others who…
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Walk4NF Naperville Details Get ready for the 24th Naperville Walk4NF – the grandaddy of them all supporting those affected by…
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Walk4NF Columbia Details Get ready for the annual Columbia Walk4NF and support those with neurofibromatosis! Plus, NF Midwest is celebrating…
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Walk4NF Indianapolis Details Get ready for the annual Indianapolis Walk4NF and support those with neurofibromatosis! Plus, NF Midwest is celebrating…
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Walk4NF Madison Details Get ready for the annual Madison Walk4NF and support those with neurofibromatosis! Plus, NF Midwest is celebrating…
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