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NF Midwest News

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NF Midwest News/Blog

Champions of the Fall 2025

Welcome to Champions of the Fall! This is an exciting new fundraising and awareness campaign from NF Midwest, running from October…

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iNFo Fair Recordings Posted

Recordings from the 2024 iNFo Fair are now posted on NF Midwest’s YouTube channel youtube.com/@nfmidwest. There may still be more…

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My NF Guide Study

Guide If you or your child has NF1 and have not visited an NF Clinic Network (NFCN) clinic in the…

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A Big Win For NF1-PN Patients in Europe

The European Commission has granted conditional approval for EZMEKLY® (mirdametinib) to treat symptomatic, inoperable plexiform neurofibromas (PNs) in patients aged…

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CTF Unveils New Genetics of NF Page

NF Midwest is excited to share the Children’s Tumor Foundation’s new resource on the Genetics of Neurofibromatosis! Understanding the genetics…

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