A 2026 Update on Pain in NF1
A 2026 Update on Pain in NF1:Where We Have Been and Where We Are Going By Andrea Baldwin, CRNP and…
Read More
Check out past blogs and news!
A 2026 Update on Pain in NF1:Where We Have Been and Where We Are Going By Andrea Baldwin, CRNP and…
Read More
NF Midwest advocates will be in Washington, D.C., February 22–24 to urge Senators and Representatives to continue supporting research for…
Read More
NF Midwest Scholarship Applications are now open! This is your sign to kick off the new year by pursuing your…
Read More
Because of Her, It Started. Because of You, It Continues. Dear Friend of NF Midwest, My journey started in 1976…
Read More
NF Midwest is excited to share important news for our community, news that brings real hope to people living with…
Read More
Listen and learn together, with experts and each other. The morning will include: Professionals attending the event include: Join us…
Read MoreThe Response Evaluation in Neurofibromatosis and Schwannomatosis (REiNS) Collaborative is an international effort to develop new standardized response criteria for determining treatment response in patients with NF1,…
Read More
Joe Booe, Patient Education Manager from Alexion Pharmaceuticals, will share discovering possibilities for neurofibromatosis type 1 (NF1) plexiform neurofibromas in…
Read More
Researchers supported by NTAP have announced an exciting breakthrough in gene therapy for NF1. For the first time, scientists have…
Read More
When my son, Benjamin, came home from Camp NF this summer, he couldn’t stop talking about everything he had learned…
Read More
© 2026 Neurofibromatosis Midwest - non profit 501(c)(t3). Site Map - Privacy Policy
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.