News/Blog

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SamJam4NF’s Finale

Posted By NF Midwest | On October 15th, 2025

They gave 10 AMAZING YEARS to the cause and raised a lot of funds. Thank you to the Oswald family…

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Women with NF1 Have a 5X Higher Risk of Breast Cancer – Have a Plan, Get a Scan!

Posted By NF Midwest | On September 30th, 2025

If you or someone you love has neurofibromatosis type 1 (NF1), it’s important to know that women with NF1 between…

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Apply to the 2026 NF Young Adult Leadership Program

Posted By Diana Haberkamp | On August 12th, 2025

Are you a passionate young adult looking to make a difference in your community? The NF Young Adult Leadership Program…

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I Wish I Could Participate in the My NF Guide Research Study

Posted By Karissa Haberkamp | On August 8th, 2025

Help Improve NF1 Care!Even Your Own Right Now!Participants Needed! I’m lucky to be able to go to an NF clinic,…

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Champions of the Fall 2025

Posted By Ted Woodlock | On July 18th, 2025

Welcome to Champions of the Fall! This is an exciting new fundraising and awareness campaign from NF Midwest, running from October…

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Protected: Navigating Stress and Cultivating Wellness

Posted By Diana Haberkamp | On October 16th, 2025

There is no excerpt because this is a protected post.

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Transitioning to Adult Care

Posted By Diana Haberkamp | On October 9th, 2025

Joe Booe, Patient Education Manager from Alexion Pharmaceuticals, will share information about transitioning to adult care. Objectives: This is a virtual…

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Pain Awareness Month

Posted By Karissa Haberkamp | On September 12th, 2025

September is Pain Awareness Month!Chronic pain affects millions—including people living with NF and SWN. Tumors, bone complications, migraines, and other…

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Strengthening the NF Community: Thanks to SpringWorks

Posted By Ted Woodlock | On September 10th, 2025

SpringWorks Sponsorship Brings Hope and Support to the NF Community We are excited to share some wonderful news — SpringWorks Therapeutics is…

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Helping Your Child with NF Thrive at School

Posted By Karissa Haberkamp | On September 3rd, 2025

Back-to-school season brings new routines, new teachers, and sometimes new challenges for families living with neurofibromatosis (NF). That’s why we’re…