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NF Midwest News

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NF Midwest News/Blog

Pain Awareness Month

September is Pain Awareness Month!Chronic pain affects millions—including people living with NF and SWN. Tumors, bone complications, migraines, and other…

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Helping Your Child with NF Thrive at School

Back-to-school season brings new routines, new teachers, and sometimes new challenges for families living with neurofibromatosis (NF). That’s why we’re…

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Hydrocephalus Awareness Month

September is National Hydrocephalus Awareness Month, a time to be iNFormed about this condition that affects people of all ages….

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Champions of the Fall 2025

Welcome to Champions of the Fall! This is an exciting new fundraising and awareness campaign from NF Midwest, running from October…

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My NF Guide Study

If you or your child has NF1 and have not visited an NF Clinic Network (NFCN) clinic in the past…

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Champions of the Fall

Two Months. One Champion. Rally Your Crew! A maximum of five individual or crews may sign up for NF Midwest’s…

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2025 North Shore Century Ride

A Collaboration with Children’s Tumor Foundation. The NSC ride is organized by the Evanston Bicycle Club. Join the NF Midwest…

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The NF1 Cognitive Aging Project

Participants 40+ May Earn $40. Florida State University College of Medicine is conducting a study to investigate cognitive patterns and…

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SMART-NF1 Project

Parent’s May Earn $10. Kids 13-17 May Earn $210. Florida State University College of Medicine is conducting a study to…

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Young Leadership Program

Are you a passionate young adult looking to make a difference? The NF Young Adult Leadership Program is your chance…

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