Challenges of Managing NF1-Related Plexiform Neurofibromas (NF1-PN)
Are you and your HCP often in agreement with your treatment plan for neurofibromatosis type 1 (NF1) or neurofibromatosis type…
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Check out past blogs and news!
Are you and your HCP often in agreement with your treatment plan for neurofibromatosis type 1 (NF1) or neurofibromatosis type…
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They gave 10 AMAZING YEARS to the cause and raised a lot of funds. Thank you to the Oswald family…
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If you or someone you love has neurofibromatosis type 1 (NF1), it’s important to know that women with NF1 between…
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Help Improve NF1 Care!Even Your Own Right Now!Participants Needed! I’m lucky to be able to go to an NF clinic,…
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Welcome to Champions of the Fall! This is an exciting new fundraising and awareness campaign from NF Midwest, running from October…
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🎁 Get ready for a little holiday windfall! On Wednesday, November 26th—just before Thanksgiving, Black Friday, and Cyber Monday—one lucky…
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Gina Friesl, Patient Education Manager from Alexion Pharmaceuticals, will share information about Navigating Stress and Cultivating Wellness. Objectives: This is a…
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Joe Booe, Patient Education Manager from Alexion Pharmaceuticals, will share information about transitioning to adult care. Objectives: This is a virtual…
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September is Pain Awareness Month!Chronic pain affects millions—including people living with NF and SWN. Tumors, bone complications, migraines, and other…
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SpringWorks Sponsorship Brings Hope and Support to the NF Community We are excited to share some wonderful news — SpringWorks Therapeutics is…
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Back-to-school season brings new routines, new teachers, and sometimes new challenges for families living with neurofibromatosis (NF). That’s why we’re…
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September is National Hydrocephalus Awareness Month, a time to be iNFormed about this condition that affects people of all ages….
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