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43 Years of Care and Ensuring No One Fights Alone!
Neurofibromatosis Midwest

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

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    “Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine.  We were no longer alone.  They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away.  Trust me when I say my NF is much easier with them in my corner. ”
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    “..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
    -Sue

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    “I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
    -Jessica

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    “{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate

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    “Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29

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10 events found.

Events Search and Views Navigation

Event Views Navigation

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Today
  • May 2021

  • Sat 15
    May 15, 2021 | 10:00 am - 1:00 pm CDT

    Walk4NF YOUR WAY Madison, WI

    Walk Your Way Madison Details 1. Choose your place and people to walk with Our Madison walk is on this...

  • Tue 18
    May 18, 2021 | 6:30 pm - 7:30 pm CDT

    NF Open Chat

    Online

    A casual online get together to chat, catch up, share experiences and resources, and ask questions within the NF Midwest...

  • June 2021

  • Thu 10
    June 10, 2021 | 8:00 pm - 9:00 pm CDT

    Parent Group Meeting

    Online

    If you're a parent of a child with neurofibromatosis type 1, type 2, or schwannomatosis you're welcome to join our...

  • Sat 26
    June 26, 2021 - June 30, 2021

    Camp New Friends 2021

    Blue Ridge School 273 Mayo Drive, St. George, VA, United States

    Camp New Friends, run by Brainy Camps from the Children’s National Medical center has redesigned its programming this summer to...

  • July 2021

  • Wed 7
    July 7, 2021 - September 2, 2021

    Hand to Heart Art 4NF

    Kalona is selling her art and plants to support NF1. Her granddaughter has neurofibromatosis and I am trying to help...

  • October 2021

  • Sun 17
    Featured October 17, 2021 | 5:00 pm - 6:30 pm CDT

    Community Celebrathon

    Online

    Join us to celebrate the people, the programs, and the supporters of NF Midwest. It will be a casual hour...

  • November 2021

  • Sat 13
    November 13, 2021 | 9:00 am - 4:00 pm CST

    Virtual Neurofibromatosis iNFo Fair

    Online

    NF Midwest, Texas NF, NF Northeast, and The Littlest Tumor Foundation present an online day of learning for the NF...

  • January 2022

  • Thu 27
    January 27, 2022 | 7:00 pm - 8:00 pm CST

    NF Power Hour – ABLE Accounts

    Join us as Rosemary Laudani, Manager of Illinois ABLE, explains the benefits of ABLE (“Achieving a Better Life Experience”) accounts...

  • March 2022

  • Thu 10
    March 10, 2022 | 8:00 pm - 9:00 pm CST

    Parent Group Meeting

    Online

    If you're a parent of a child with neurofibromatosis type 1, type 2, or schwannomatosis you're welcome to join our...

  • Tue 22
    March 22, 2022 | 5:30 pm - 6:30 pm CDT

    Webinar: Learn About Camp New Friends

    Online

    Register for the Event

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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.

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