If you’re a parent of a child with neurofibromatosis type 1, type 2, or schwannomatosis you’re welcome to join our parent group which meets online on the 2nd Thursday of every month at 8 PM CST. Even if your child is grown, you’re welcome to join us and share your wisdom. We will often have special guests and special topics and we hope to always have time to express concerns and/or share stories.
Note, NF Midwest serves Illinois, Indiana, Iowa, Kentucky, Missouri, and Wisconsin. We invite people from other areas to attend, however, if the group gets large we may have to restrict participation to our area. Also, some topics or areas of support may not apply if you’re not from our area.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.