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Neurofibromatosis Midwest

Neurofibromatosis Midwest

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    “I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
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    “Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29

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10 events found.

NF Get Togethers

  1. Events
  2. NF Get Togethers

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Events

Today
  • June 2021

  • Thu 10

    Parent Group Meeting

    June 10, 2021 | 8:00 pm - 9:00 pm CDT
    Online

    If you're a parent of a child with neurofibromatosis type 1, type 2, or schwannomatosis you're welcome to join our...

  • Sat 26

    Camp New Friends 2021

    June 26, 2021 - June 30, 2021
    Blue Ridge School 273 Mayo Drive, St. George, VA, United States

    Camp New Friends, run by Brainy Camps from the Children’s National Medical center has redesigned its programming this summer to...

  • October 2021

  • Sun 17

    Community Celebrathon

    Featured October 17, 2021 | 5:00 pm - 6:30 pm CDT
    Online

    Join us to celebrate the people, the programs, and the supporters of NF Midwest. It will be a casual hour...

  • November 2021

  • Sat 13

    Virtual Neurofibromatosis iNFo Fair

    November 13, 2021 | 9:00 am - 4:00 pm CST
    Online

    NF Midwest, Texas NF, NF Northeast, and The Littlest Tumor Foundation present an online day of learning for the NF...

  • March 2022

  • Thu 10

    Parent Group Meeting

    March 10, 2022 | 8:00 pm - 9:00 pm CST
    Online

    If you're a parent of a child with neurofibromatosis type 1, type 2, or schwannomatosis you're welcome to join our...

  • July 2022

  • Sun 10

    Camp New Friends 2022

    July 10, 2022 - July 16, 2022
    Blue Ridge School 273 Mayo Drive, St. George, VA, United States

    July 10-July 16, 2022 for all July 8-July 16, 2022 for teens (optional) Register and learn more at www.brainycamps.com/camps/neurofibromatosis.html. NF...

  • December 2022

  • Thu 8

    Discussion About Social Skills & Executive Functioning (Monthly Parent’s Group)

    December 8, 2022 | 8:00 pm - 9:00 pm CST
    Online

    Register or Join Do you have kids with NF1, NF2-SWN, or Schwannomatosis? Whether they're grown or still young, join us...

  • July 2023

  • Sun 30

    NF Young Adult International Summit

    July 30, 2023 | 10:00 am - 2:00 pm EDT
    Virtual

    REGISTER   Join young adults with NF from around the world at this four hour virtual event.  Organized by NF impacted...

  • June 2025

  • Fri 20

    Neurofibromatosis and a Portrait of 1 in 3,000: Ashok Shrestha’s Transformation

    June 20, 2025 | 6:00 pm - 8:00 pm CDT
    International Museum of Surgical Sciences 1524 North Lake Shore Dr, Chicago, Illinois

    Neurofibromatosis and a Portrait of 1 in 3,000: Ashok Shrestha’s Transformation is a powerful exhibition featuring nine works of printmaking, drawing,...

    Free
  • August 2025

  • Fri 1

    Neurofibromatosis and a Portrait of 1 in 3,000: Ashok Shrestha’s Transformation

    August 1, 2025 | 6:00 pm - 8:00 pm CDT
    International Museum of Surgical Sciences 1524 North Lake Shore Dr, Chicago, Illinois

    Join NF Midwest, NF physicians, the NF community, and others in celebrating the work of artist Rachel Mindrup and the...

    FREE
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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.

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