University of Chicago NF Clinic Update
Dr. James Tonsgard, longtime neurologist and Director of the Neurofibromatosis (NF) Clinic at the University of Chicago, has announced that he will retire from seeing patients at the end of 2026.
Dr. Tonsgard has served as a clinician at the University of Chicago for 49 years and has led a dedicated NF clinic for more than 45 years, building one of the region’s most trusted centers for neurofibromatosis and schwannomatosis care. A steadfast advocate and champion for his patients, his compassion, leadership, and commitment have shaped NF care for generations of individuals and families.
While Dr. Tonsgard will be stepping away from direct patient care, he will continue his work in research and other aspects of NF patient care, remaining actively engaged in advancing understanding and improving outcomes for the NF community.
Continuity of Care
Patients can be reassured that care at the University of Chicago NF Clinic will continue without interruption. The rest of the NF clinic team will remain fully in place.
Patients are expected to transition to Dr. Shawn Damodharan, whom many families have already been seeing since 2024, or to other physicians within the clinic. These providers work closely together and are trusted colleagues who have been supported and mentored by Dr. Tonsgard to ensure a smooth and well‑coordinated transition of care.
This planned transition reflects a shared commitment to continuity, collaboration, and high‑quality, long‑term care for patients and families.
About Dr. Shawn Damodharan
Dr. Shawn Damodharan is the Director of Pediatric Neuro‑Oncology at UChicago Medicine / Chicagoland Children’s Health Alliance. He specializes in brain tumors and neurocutaneous disorders, including neurofibromatosis (NF1 and NF2‑related schwannomatosis).
Dr. Damodharan’s interest in NF began during his pediatric residency and has remained a central focus throughout his training and career, ultimately shaping his path into neuro‑oncology. He is deeply committed to the multidisciplinary, longitudinal care required by individuals with NF and values both the advances in surveillance and treatment and the lasting relationships formed with patients and families over time.
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