43 Years of Care and Ensuring No One Fights Alone!

SMART-NF1 Project

Florida State University College of Medicine is conducting a study to improve understanding of cognitive, behavioral, and socioeconomic function in the daily lives of adolescents with NF1. Participants must have a diagnosis of NF1, be 13-17 years old, have a third-grade or higher level of English comprehension, reside in the U.S., and have access to a smartphone. Participants and parents will be paid. If interested, please complete this brief screening survey https://redcap.link/SMART-NF1. If you have questions,  please email 

If you…

  • Have a diagnosis of NF1
  • Are 13-17 years old
  • Have a third grade or higher level of English comprehension
  • Reside in the United States
  • Have access to a smart phone

….you may be eligible to participate.

Participation Includes:

  • Parents will complete an online survey (about 20 minutes). and receive $10 compensation
  • Adolescents will complete an online survey (about 40 minutes). Complete short surveys about
    mood and cognition on a smartphone app 3-4 times a day (out of school hours) for two
    weeks. Wear a Fitbit activity tracker (provided by the researchers) for two weeks. Receive up to $210
    compensation.

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