
be iNFormed – Reproductive Options in Neurofibromatosis and Schwannomatosis
By Amanda Bergner, MS, CGC (NF Midwest be iNFormed Series) People who themselves have been diagnosed with NF1, NF2 and…
Read MoreCheck out past blogs and news!
By Amanda Bergner, MS, CGC (NF Midwest be iNFormed Series) People who themselves have been diagnosed with NF1, NF2 and…
Read MoreBy Dr. Robert Listernick (NF Midwest be iNFormed Series) Optic pathway gliomas are benign (low grade) pilocytic tumors. They may…
Read MoreA consortium of medical institutions is collecting limited information on schwannomatosis patients. This includes their symptoms, their management and medication,…
Read MoreJames Tonsgard MD and Scott Hunter PhD (NF Midwest be iNFormed Series) Neurofibromatosis Midwest is excited to start a new…
Read MoreCheck out our new website! We have been working on this for several months after dreaming about it for several…
Read MoreA new edition (3rd) of the booklet Understanding Neurofibromatosis is now available online for free or by mail for $5.00. It is…
Read MoreWhat’s considered to be a long time at one job? At what point is your dedication respected and honored? What…
Read MoreIf you or your child has been diagnosed with neurofibromatosis (NF) please join the NF Registry today. The key to…
Read MoreIndiana University is conducting a NF1 quality of life study. This study will help us to better understand how NF1…
Read MoreThe Washington University Neurofibromatosis (NF) Center has launched a unique internet-based NF1 Registry, which is a 30-minute questionnaire. This questionnaire…
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