
Steve – A Face of NF
I am 67 years old and I have NF2. When I was 45, I had my first acoustic neuroma (now…
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I am 67 years old and I have NF2. When I was 45, I had my first acoustic neuroma (now…
Read MoreI have been running competitively for almost 2 years and love it. It helps me relax, great stress reliever gave…
Read MoreHi! I was diagnosed with neurofibromatosis type 1 when I was 3 years old. I am the only one in…
Read MoreMy name is Rick. I wasn’t diagnosed with NF Type 1 until I was 32 years old. I had no…
Read MoreI have NF1. I was born 1970 as an identical twin. My mom had two boys before us and…
Read MoreEver feel like you don’t get the chance to meet other NF friends and families at Great Steps? Let’s change…
Read MoreGrowing up I always knew I was different. I had spots all over my body. I actually thought for…
Read MoreI have NF type 1. For the most part, my symptoms have been mild, but the most significant challenges I’ve…
Read MoreI am 64 years old with no prior neurofibromatosis family history and none of my 6 siblings have NF, making…
Read MoreAna is 10 years old. She was diagnosed with neurofibromatosis type 2 when she was seven. Her genetic disorder was…
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