New Survey for Adults Neurofibromatosis or Schwannomatosis-Study CLOSED
THIS STUDY HAS BEEN CLOSED BY THE RESEARCHERS. THANK YOU ALL WHO PARTICIPATED!!!! Researchers are looking for adults with neurofibromatosis…
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Check out past blogs and news!
THIS STUDY HAS BEEN CLOSED BY THE RESEARCHERS. THANK YOU ALL WHO PARTICIPATED!!!! Researchers are looking for adults with neurofibromatosis…
Read MoreDue to COVID our physical walks are cancelled but we’re still following our walk motto that “No One Fights Alone…
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UPDATE: PLEASE BE ADVISED OUR CUT-OFF FOR REGISTRATIONS IS JULY 6!!!! This date is the last date for registration information…
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The 2020 event has ended, but we do this every year! Visit our Birdies for Charity Pledge form for more…
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We love to highlight rock star fundraising teams and MavMan Sidekicks did something extraordinary in just 7 days! Kara, Maverick’s…
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KOSELUGO FAQS In April 2020 the U.S. Food and Drug Administration (FDA) approved KOSELUGOTM (selumetinib) for use in children over…
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We want you to know that we are working from home to do anything we can to continue to support you…
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The hearts and thoughts of the NF Midwest staff, board, and community are with people all over the world who…
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Below are answers to many of the frequently asked questions regarding the COVID stimulus packet. We hope this helps our…
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Like the rest of the world, the staff and board of NF Midwest has been busy understanding and planning for what may…
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