Participate in NF1 Pain Study/App
If you struggle with pain from NF1, you are invited to participate in a clinical trial to evaluate a chronic…
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Check out past blogs and news!
If you struggle with pain from NF1, you are invited to participate in a clinical trial to evaluate a chronic…
Read MoreKalona is selling her art and plants to support NF1. Her granddaughter has neurofibromatosis and I am trying to help…
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An update of the diagnostic criteria for neurofibromatosis type 1 has just been published in Genetics in Medicine, the official…
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Are you a young adult living with NF and want to make a difference in your community? In addition to…
Read MoreCamp New Friends, run by Brainy Camps from the Children’s National Medical center has redesigned its programming this summer to…
Read MoreCamp New Friends, run by Brainy Camps from the Children’s National Medical center has redesigned its programming this summer to…
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Online Harvard study to help teens learn Stress and Symptom Management Skills NOTE: PLEASE CONTACT THE RESEARCHERS DIRECTLY TO PARTICIPATE-NF…
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If you’re a parent of a child with neurofibromatosis type 1, type 2, or schwannomatosis you’re welcome to join our…
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If you’re a parent of a child with neurofibromatosis type 1, type 2, or schwannomatosis you’re welcome to join our…
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Join NF Midwest for a Q&A and casual conversation with NF physicians from Indiana University and Riley Hospital for Children….
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