
20 Million Secured for NF Research!
We did it! We’re pleased to announce that $20 million in federal funding has been secured for the Neurofibromatosis Research…
Read MoreCheck out past blogs and news!
We did it! We’re pleased to announce that $20 million in federal funding has been secured for the Neurofibromatosis Research…
Read MoreThe end of the year is a vital month for nonprofits. In this season of giving nonprofits raise a good…
Read MorePeople who themselves have been diagnosed with NF1, NF2 and Schwannomatosis, or who have a child with one of these…
Read MoreVelopharyngeal insufficiency (VPI) is a resonance disorder that occurs during speech that results from the inability of the vellum (or…
Read MoreAnnie, the captain of Hartigan’s Heroes, heard about Toyota Cares from a neighbor. She reached out to her local Toyota…
Read MoreLet’s say hello to Jessica and her family! Her team, Ellie’s Crew, has been hard at work this year! Jessica…
Read MoreDue to the pandemic there will be NO NF Midwest Symposium and iNFo Fair this year. We may present short…
Read MoreMeet Tim and Sue! Tim is one of our amazing, out of this world, extraordinary volunteers who heads up the…
Read MoreTHIS STUDY HAS BEEN CLOSED BY THE RESEARCHERS. THANK YOU ALL WHO PARTICIPATED!!!! Researchers are looking for adults with neurofibromatosis…
Read MoreDue to COVID our physical walks are cancelled but we’re still following our walk motto that “No One Fights Alone…
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