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43 Years of Care and Ensuring No One Fights Alone!
Neurofibromatosis Midwest

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

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    “..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
    -Sue

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    “I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
    -Jessica

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    “Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29

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10 events found.

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  • 2017 SamJam 4NF
    Sep 16
    12:00 pm

    2017 SamJam 4NF

  • Neurofibromatosis Education, Patient Support, and Awareness Seminar
    Sep 23
    9:00 am - 12:00 pm

    Neurofibromatosis Education, Patient Support, and Awareness Seminar

  • GS4NF in Taylorville, IL
    Sep 23
    9:00 am - 1:00 pm

    GS4NF in Taylorville, IL

  • Kentucky Support Group Meeting November 18th
    Nov 18
    10:00 am - 12:00 pm

    Kentucky Support Group Meeting November 18th

  • Giving Tuesday 11/28/2017
    Nov 28
    12:00 am - 11:59 pm

    Giving Tuesday 11/28/2017

  • Indianapolis Holiday Party
    Dec 9
    5:30 pm - 8:30 pm

    Indianapolis Holiday Party

  • Kentucky Support Group Meeting December 16th
    Dec 16
    10:00 am - 12:00 pm

    Kentucky Support Group Meeting December 16th

  • Kentucky Support Group Meeting March 17th
    Mar 17
    10:00 am - 12:00 pm

    Kentucky Support Group Meeting March 17th

  • NF Adult Group Game Night in Chicago
    Apr 4
    6:30 pm - 10:00 pm

    NF Adult Group Game Night in Chicago

  • Kentucky Support Group Meeting April 21st
    Apr 21
    1:00 pm - 5:00 pm

    Kentucky Support Group Meeting April 21st

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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.

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