Celebrating 41 Years
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Neurofibromatosis Education, Patient Support, and Awareness Seminar

September 23, 2017 | 9:00 am - 12:00 pm EDT


This FREE seminar in Notre Dame, Indiana provides an opportunity to raise awareness about Neurofibromatosis and share resources, experiences, & expertise to support patient/families in our community…making sure No One Fights Alone! Presented by the University of Notre Dame, the Boler-Parseghian Center, and NF Midwest.

Planned Schedule (subject to change):

9:00 – 9:15 am – Introduction: Kasturi Haldar, PhD, Director – The Boler Parseghian Center for Rare and Neglected Diseases

9:15- 9:30 am – Barbara Calhoun, MSN, RN, PNP – Natural History Study of NF and Outreach Opportunities

9:30- 10:00 am – Diana Haberkamp, Executive Director, NF Midwest

10:00-10:15 am – Break

10:15-10:45 am – Nicole Sevison, RN

10:45- 11:15 am – Mary Alice Reid, MD, Pediatrician, Beacon Pediatrics

11:15- 12:00 pm – Patient Family Discussions

This event is free and open to the public.

Please register below. If you have questions please email or call (574) 631-8831.

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