Name: Parent Group Meeting with Genetics Discussion
Start: 2021-05-13T20:00:00-05:00
End: 2021-05-13T21:00:00-05:00
Location: Online

43 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
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“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

2019 Symposium and iNFo Fair

Nov 9

Featured 8:00 am - 4:30 pm

2019 Symposium and iNFo Fair
Camp New Friends 2020 Virtual Camp

Jul 20

July 20, 2020 - July 24, 2020

Camp New Friends 2020 Virtual Camp
The Walk That Wasn’t

Oct 17

10:00 am - 12:00 pm

The Walk That Wasn’t
iNFormation Session or NF Power Hour

Jan 26

7:00 pm - 8:30 pm

iNFormation Session or NF Power Hour
INFormation Session/NF Power Hour

Feb 3

7:00 pm - 8:30 pm

INFormation Session/NF Power Hour
NF Power Hour-What and When to Talk To Your Kids about NF

Feb 16

7:30 pm - 9:00 pm

NF Power Hour-What and When to Talk To Your Kids about NF
Parent Group Meeting with Speech Discussion

Apr 8

8:00 pm - 9:00 pm

Parent Group Meeting with Speech Discussion
Walk4NF YOUR WAY Columbia, MO

May 1

10:00 am - 1:00 pm

Walk4NF YOUR WAY Columbia, MO
NF Power Hour-Meet the Docs from Indiana University

May 5

6:30 pm - 7:30 pm

NF Power Hour-Meet the Docs from Indiana University
Parent Group Meeting with Genetics Discussion

May 13

8:00 pm - 9:00 pm

Parent Group Meeting with Genetics Discussion

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