Name: Meet the MEKs: A Power Hour 4NF
Start: 2025-04-29T17:30:00-05:00
End: 2025-04-29T17:30:00-05:00

43 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

Caregivers Need Care, Too

Oct 16

Caregivers Need Care, Too

7:00 pm - 9:00 pm

FREE
2024 iNFo Fair

Oct 26

2024 iNFo Fair

Featured 8:00 am - 4:00 pm
Windfall Wednesday

Nov 5

Windfall Wednesday

November 5, 2024 | 8:00 am - November 27, 2024 | 6:00 pm CST
Meet Camp NF

Jan 28

Meet Camp NF

6:00 pm - 7:00 pm
NF1 PN Educational Event hosted by Alexion

Jan 28

NF1 PN Educational Event hosted by Alexion

8:00 pm - 9:00 pm
NF1 PN Educational Event hosted by Alexion

Feb 11

NF1 PN Educational Event hosted by Alexion

8:00 pm - 9:00 pm
Clinical Trials for Treating Pain in Schwannomatosis

Feb 25

Clinical Trials for Treating Pain in Schwannomatosis

Featured 6:00 pm - 7:00 pm
All About NF1, PN, and a Treatment Option

Mar 27

All About NF1, PN, and a Treatment Option

8:00 pm - 9:00 pm
SamJam Finale!

Apr 26

SamJam Finale!

5:00 pm - 11:00 pm

$40
Meet the MEKs: A Power Hour 4NF

Apr 29

Meet the MEKs: A Power Hour 4NF

5:30 pm

Donate

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Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

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