Name: NF1 Peer Conversations
Start: 2026-03-24T19:00:00-05:00
End: 2026-03-24T20:00:00-05:00

43 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

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0 events 9 0 events, 9	0 events 10 0 events, 10	0 events 11 0 events, 11	0 events 12 0 events, 12	0 events 13 0 events, 13	1 event 14 1 event, 14 8:30 am - 1:00 pm Lexington, KY – Community Conversation March 14 \| 8:30 am - 1:00 pm CDT Lexington, KY – Community Conversation Listen and learn together, with experts and each other. The morning will include: Professionals attending the event include: Join us...	0 events 15 0 events, 15
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0 events 23 0 events, 23	1 event 24 1 event, 24 7:00 pm - 8:00 pm NF1 Peer Conversations March 24 \| 7:00 pm - 8:00 pm CDT NF1 Peer Conversations Join other adults living with NF1 for NF1 Peer Conversations—an online, supportive space to connect, share experiences, and talk openly...	0 events 25 0 events, 25	0 events 26 0 events, 26	0 events 27 0 events, 27	0 events 28 0 events, 28	0 events 29 0 events, 29
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March 14

March 14 | 8:30 am - 1:00 pm CDT

Lexington, KY – Community Conversation

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March 24

March 24 | 7:00 pm - 8:00 pm CDT

NF1 Peer Conversations

There are no events on this day.

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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

Calendar of Events

1 event 14

1 event, 14

1 event 24

1 event, 24

Lexington, KY – Community Conversation

NF1 Peer Conversations

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