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43 Years of Care and Ensuring No One Fights Alone!
Neurofibromatosis Midwest

Neurofibromatosis Midwest

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    “Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine.  We were no longer alone.  They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away.  Trust me when I say my NF is much easier with them in my corner. ”
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    “..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
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    “I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
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    “Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29

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10 events found.

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Today
  • September 2017

  • Sat 16
    September 16, 2017 | 12:00 pm CDT

    2017 SamJam 4NF

    Macoupin Fairgrounds 21368 Rte. 4, Carlinville, IL, United States

    12 hours of music, six bands, 10 varieties of Schlafly Beer, great food, tub auction, Carribbean cruise raffle, all benefitting...

  • Sat 23
    September 23, 2017 | 9:00 am - 12:00 pm EDT

    Neurofibromatosis Education, Patient Support, and Awareness Seminar

    Jordan Hall of Science 215 Jordan Hall of Science, Notre Dame, IN

    This FREE seminar in Notre Dame, Indiana provides an opportunity to raise awareness about Neurofibromatosis and share resources, experiences, & expertise to...

  • Sat 23
    September 23, 2017 | 9:00 am - 1:00 pm CDT

    GS4NF in Taylorville, IL

    Manners Park 100 E. Palmer, Taylorville, IL, United States

    About this Event Get ready for the 3rd Great Steps Neurofibromatosis Walk and 5K Run in Taylorville, IL! The Layton...

  • November 2017

  • Sat 18
    November 18, 2017 | 10:00 am - 12:00 pm EST

    Kentucky Support Group Meeting November 18th

    Cambridge Golf Course Restaurant 1034 Beacon Hill, Evansville, IN, United States

    This week there will be new material from NF Midwest's Symposium and iNFo Fair, plus new information to share. Also,...

  • Tue 28
    November 28, 2017 | 12:00 am - 11:59 pm CST

    Giving Tuesday 11/28/2017

    We have two days for getting deals – Black Friday and Cyber Monday. On #GivingTuesday, we have a day for...

  • December 2017

  • Sat 9
    December 9, 2017 | 5:30 pm - 8:30 pm EST

    Indianapolis Holiday Party

    Aquatic Center 651 Vestal Rd, Plainfield, IN, United States

    Join our Indiana NF family for a fun party to see all our Great Steps friends again and also welcome...

  • Sat 16
    December 16, 2017 | 10:00 am - 12:00 pm EST

    Kentucky Support Group Meeting December 16th

    Cambridge Golf Course Restaurant 1034 Beacon Hill, Evansville, IN, United States

    The Kentucky NF Midwest group will be holding their monthly NF Support group meeting Saturday, December 16th, from 10 am...

  • March 2018

  • Sat 17
    March 17, 2018 | 10:00 am - 12:00 pm EDT

    Kentucky Support Group Meeting March 17th

    Cambridge Golf Course Restaurant 1034 Beacon Hill, Evansville, IN, United States

    The Kentucky NF Midwest group will be holding their monthly NF Support group meeting Saturday, March 17th, from 10 am...

  • April 2018

  • Wed 4
    April 4, 2018 | 6:30 pm - 10:00 pm CDT

    NF Adult Group Game Night in Chicago

    Bridget McNeill's Grill and Pub 420 W Belmont Ave, Chicago, IL, United States

    Join other adults with NF for a fun night! Start with pizza, appetizers and socializing from 6:30 to 8 pm...

  • Sat 21
    April 21, 2018 | 1:00 pm - 5:00 pm EDT

    Kentucky Support Group Meeting April 21st

    This month the Kentucky NF Support group meeting will be held Saturday, April 21st, from 1-5pm in Mount Sterling.  One of...

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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.

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