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43 Years of Care and Ensuring No One Fights Alone!
Neurofibromatosis Midwest

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

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    “Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine.  We were no longer alone.  They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away.  Trust me when I say my NF is much easier with them in my corner. ”
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    “..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
    -Sue

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    “I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
    -Jessica

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    “Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29

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10 events found.

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Today
  • November 2019

  • Sat 9
    Featured November 9, 2019 | 8:00 am - 4:30 pm CST

    2019 Symposium and iNFo Fair

    Northern Illinois University Building 5555 Trillium Boulevard, Hoffman Estates, IL, United States

    be iNFormed! Join us for an exciting day in which you will learn from the experts and share experiences about...

  • July 2020

  • Mon 20
    July 20, 2020 - July 24, 2020

    Camp New Friends 2020 Virtual Camp

    Blue Ridge School 273 Mayo Drive, St. George, VA, United States

    Do you have a child interested in attending Camp New Friends, a camp for kids with neurofibromatosis? If so, NF...

  • October 2020

  • Sat 17
    October 17, 2020 | 10:00 am - 12:00 pm CDT

    The Walk That Wasn’t

    Due to COVID our physical walks are cancelled but we’re still following our walk motto that “No One Fights Alone...

  • January 2021

  • Tue 26
    January 26, 2021 | 7:00 pm - 8:30 pm CST

    iNFormation Session or NF Power Hour

    NF Midwest, NF Northeast, and NF Texas have teamed up to bring the NF community two improtant virtual iNFormation sessions...

  • February 2021

  • Wed 3
    February 3, 2021 | 7:00 pm - 8:30 pm CST

    INFormation Session/NF Power Hour

    NF Midwest, NF Northeast, and NF Texas have teamed up to bring the NF community two important virtual iNFformation sessions...

  • Tue 16
    February 16, 2021 | 7:30 pm - 9:00 pm CST

    NF Power Hour-What and When to Talk To Your Kids about NF

    Edna Romero, PhD., Assistant Professor of Psychiatry and Behavioral Sciences (Child and Adolescent Psychiatry) at Lurie Children's Hospital of Chicago will...

  • April 2021

  • Thu 8
    April 8, 2021 | 8:00 pm - 9:00 pm CDT

    Parent Group Meeting with Speech Discussion

    Online

    If you're a parent of a child with neurofibromatosis type 1, type 2, or schwannomatosis you're welcome to join our...

  • May 2021

  • Sat 1
    May 1, 2021 | 10:00 am - 1:00 pm CDT

    Walk4NF YOUR WAY Columbia, MO

    Walk Your Way Columbia Details 1. Choose your place and people to walk with Our Columbia walk is on this...

  • Wed 5
    May 5, 2021 | 6:30 pm - 7:30 pm CDT

    NF Power Hour-Meet the Docs from Indiana University

    Online

    Join NF Midwest for a Q&A and casual conversation with NF physicians from Indiana University and Riley Hospital for Children....

  • Thu 13
    May 13, 2021 | 8:00 pm - 9:00 pm CDT

    Parent Group Meeting with Genetics Discussion

    Online

    If you're a parent of a child with neurofibromatosis type 1, type 2, or schwannomatosis you're welcome to join our...

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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.

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