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43 Years of Care and Ensuring No One Fights Alone!
Neurofibromatosis Midwest

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

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    “Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine.  We were no longer alone.  They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away.  Trust me when I say my NF is much easier with them in my corner. ”
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    “..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
    -Sue

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    “I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
    -Jessica

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    “{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate

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    “Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29

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10 events found.

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Today
  • June 2023

  • Sat 3
    June 3, 2023 | 9:00 am - 1:00 pm CDT

    2023 Walk4NF Naperville, IL

    Naperville Riverwalk 912 Honorary Sindt Memorial Ct, Naperville, IL, United States

    Walk4NF Naperville Details Get ready for the 22nd Naperville Walk4NF-the largest walk and party in the park for NF in...

  • Sat 24
    June 24, 2023 | 9:00 am - 1:00 pm CDT

    2023 Walk4NF Columbia, MO

    Stephens Lake Park, Columbia, MO 2001 E Broadway, Columbia, MO, United States

    Walk4NF Columbia Details Get ready for the annual Columbia Walk4NF!  Plus, NF Midwest is celebrating over 40 years as a...

  • July 2023

  • Sun 16
    July 16, 2023 - July 22, 2023

    Camp New Friends 2023

    Blue Ridge School 273 Mayo Drive, St. George, VA, United States

    Camp New Friends is a neurofibromatosis specific camp for ages 7-17. Camp New Friends offers seven days and six nights...

  • Thu 27
    July 27, 2023 | 6:00 pm - 7:00 pm PDT

    Free NF1 Plexiform Neurofibroma Educational Virtual Event

    Virtual

    VIEW FLYER           REGISTER

  • Sun 30
    July 30, 2023 | 10:00 am - 2:00 pm EDT

    NF Young Adult International Summit

    Virtual

    REGISTER   Join young adults with NF from around the world at this four hour virtual event.  Organized by NF impacted...

  • August 2023

  • Tue 1
    August 1, 2023 - September 30, 2023

    Walk4NF End of Summer Virtual Challenge

    Virtual

    Take the Walk4NF Challenge. Walk 25/50/100 miles for NF by September 30th. Earn a 2023 Walk4NF T-Shirt and other appreciation...

  • Mon 7
    August 7, 2023 | 7:00 pm - 8:00 pm EDT

    Free NF1 Plexiform Neurofibroma Educational Virtual Event

    Virtual

    VIEW FLYER           REGISTER

  • Thu 24
    August 24, 2023 | 5:00 pm - 6:00 pm CDT

    Free NF1 Plexiform Neurofibroma Educational Virtual Event

    Virtual

    VIEW FLYER           REGISTER

  • September 2023

  • Sun 10
    September 10, 2023

    North Shore Century Ride

    A Collaboration with Children's Tumor Foundation. The NSC ride is organized by the Evanston Bicycle Club. Join NF Midwest and...

  • October 2023

  • Thu 19
    October 19, 2023 | 5:00 pm - 9:00 pm CDT

    Queso for a Cause @ Panchero’s

    Panchero's Mexican Grill 2900 Trimble Rd, Columbia, Missouri

    Where: Panchero's located at 2900 Trimble Rd., Columbia, MO When: Thursday, October 19th from 5:00 pm to 9:00 pm Fundraising...

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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.

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