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43 Years of Care and Ensuring No One Fights Alone!
Neurofibromatosis Midwest

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

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    “Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine.  We were no longer alone.  They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away.  Trust me when I say my NF is much easier with them in my corner. ”
    -Myshell

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    “..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
    -Sue

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    “I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
    -Jessica

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    “{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate

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    “Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29

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10 events found.

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Today
  • October 2023

  • Thu 19
    October 19, 2023 | 5:00 pm - 9:00 pm CDT

    Queso for a Cause @ Panchero’s

    Panchero's Mexican Grill 2900 Trimble Rd, Columbia, Missouri

    Where: Panchero's located at 2900 Trimble Rd., Columbia, MO When: Thursday, October 19th from 5:00 pm to 9:00 pm Fundraising...

  • Sat 21
    October 21, 2023 | 8:00 am - 4:00 pm CDT

    2023 iNFo Fair

    In-Person Once Again! We're So Much Better Together! A day of education for families and individuals affected by neurofibromatosis, a...

  • November 2023

  • Sat 18
    November 18, 2023 | 5:00 pm - 10:00 pm CST

    SamJam’s BBQ & Boogie

    The Rustic Venues 24720 N. Standard City Road, Girard, Illinois, United States

    The music and fun is in November this year! Support the ongoing efforts for NF research and support services for...

  • Tue 28
    November 28, 2023 | 12:00 am - 11:59 pm CST

    #GivingTuesday – The Time is Now

    "The most beautiful thing about giving is that it can start with just one person, but it can change the...

  • January 2024

  • Mon 1
    January 1, 2024 | 12:00 am - September 30, 2024 | 12:00 am CDT

    2024 Walk4NF Virtual Challenge

    Wherever you live! Whenever you want until Sept. 30, 2024

    Walk4NF Virtual Challenge Details Get ready for this year's Virtual Challenge! Plus, NF Midwest is celebrating over 42 years as...

  • March 2024

  • Thu 28
    March 28, 2024 | 7:00 pm - 8:00 pm CDT

    NF1 PN Educational Event/Living With NF1 PN: How to Be Your Child’s Advocate.

    Gain a new perspective on caring for a child with NF1 PN from this presentation by Regina Zambrano, MD. Learn...

    Free
  • April 2024

  • Wed 10
    April 10, 2024 | 12:30 pm - 1:30 pm CDT

    Virtual Open Office Hours

    Looking for a friendly face and a listening ear? Do you have questions about neurofibromatosis, but aren't sure where to...

    Free
  • Sat 20
    April 20, 2024 | 9:00 am - 1:00 pm CDT

    2024 Walk4NF Columbia, MO

    Stephens Lake Park, Columbia, MO 2001 E Broadway, Columbia, MO, United States

    Walk4NF Columbia Details Get ready for the annual Columbia Walk4NF!  Plus, NF Midwest is celebrating over 42 years as a...

  • Wed 24
    April 24, 2024 | 12:30 pm - 1:30 pm CDT

    Virtual Open Office Hours

    Looking for a friendly face and a listening ear? Do you have questions about neurofibromatosis, but aren't sure where to...

    Free
  • Thu 25
    April 25, 2024 | 6:30 pm - 7:30 pm CDT

    NF Midwest Parent Group Chat

    Designed for parents with a child of any age with NF, this virtual chat provides a dedicated space for sharing...

    Free
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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.

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