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43 Years of Care and Ensuring No One Fights Alone!
Neurofibromatosis Midwest

Neurofibromatosis Midwest

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    “Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine.  We were no longer alone.  They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away.  Trust me when I say my NF is much easier with them in my corner. ”
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    “..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
    -Sue

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    “I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
    -Jessica

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    “Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29

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10 events found.

Events Search and Views Navigation

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Events

Today
  • August 2023

  • Thu 24

    Free NF1 Plexiform Neurofibroma Educational Virtual Event

    August 24, 2023 | 5:00 pm - 6:00 pm CDT
    Virtual

    VIEW FLYER           REGISTER

  • September 2023

  • Sun 10

    North Shore Century Ride

    September 10, 2023

    A Collaboration with Children's Tumor Foundation. The NSC ride is organized by the Evanston Bicycle Club. Join NF Midwest and...

  • October 2023

  • Thu 19

    Queso for a Cause @ Panchero’s

    October 19, 2023 | 5:00 pm - 9:00 pm CDT
    Panchero's Mexican Grill 2900 Trimble Rd, Columbia, Missouri

    Where: Panchero's located at 2900 Trimble Rd., Columbia, MO When: Thursday, October 19th from 5:00 pm to 9:00 pm Fundraising...

  • Sat 21

    2023 iNFo Fair

    October 21, 2023 | 8:00 am - 4:00 pm CDT

    In-Person Once Again! We're So Much Better Together! A day of education for families and individuals affected by neurofibromatosis, a...

  • November 2023

  • Sat 18

    SamJam’s BBQ & Boogie

    November 18, 2023 | 5:00 pm - 10:00 pm CST
    The Rustic Venues 24720 N. Standard City Road, Girard, Illinois, United States

    The music and fun is in November this year! Support the ongoing efforts for NF research and support services for...

  • Tue 28

    #GivingTuesday – The Time is Now

    November 28, 2023 | 12:00 am - 11:59 pm CST

    "The most beautiful thing about giving is that it can start with just one person, but it can change the...

  • March 2024

  • Thu 28

    NF1 PN Educational Event/Living With NF1 PN: How to Be Your Child’s Advocate.

    March 28, 2024 | 7:00 pm - 8:00 pm CDT

    Gain a new perspective on caring for a child with NF1 PN from this presentation by Regina Zambrano, MD. Learn...

    Free
  • April 2024

  • Wed 10

    Virtual Open Office Hours

    April 10, 2024 | 12:30 pm - 1:30 pm CDT

    Looking for a friendly face and a listening ear? Do you have questions about neurofibromatosis, but aren't sure where to...

    Free
  • Sat 20

    2024 Walk4NF Columbia, MO

    April 20, 2024 | 9:00 am - 1:00 pm CDT
    Stephens Lake Park, Columbia, MO 2001 E Broadway, Columbia, MO, United States

    Walk4NF Columbia Details Get ready for the annual Columbia Walk4NF!  Plus, NF Midwest is celebrating over 42 years as a...

  • Wed 24

    Virtual Open Office Hours

    April 24, 2024 | 12:30 pm - 1:30 pm CDT

    Looking for a friendly face and a listening ear? Do you have questions about neurofibromatosis, but aren't sure where to...

    Free
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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.

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