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Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

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-Myshell
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“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
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“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
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“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
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NF Get Togethers

Name: Lexington, KY – Community Conversation
Start: 2026-03-14T08:30:00-05:00
End: 2026-03-14T13:00:00-05:00
Location: Shriner Children’s Hospital

8:30 am

Lexington, KY – Community Conversation

March 14 | 8:30 am - 1:00 pm CDT

Shriner Children's Hospital 110 Conn Terrace, Lexington

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Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

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