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43 Years of Care and Ensuring No One Fights Alone!
Neurofibromatosis Midwest

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

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    “Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine.  We were no longer alone.  They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away.  Trust me when I say my NF is much easier with them in my corner. ”
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    “..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
    -Sue

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    “I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
    -Jessica

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    “Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29

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10 events found.

Educational Events

  1. Events
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Events

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  • November 2021

  • Sat 13

    Virtual Neurofibromatosis iNFo Fair

    November 13, 2021 | 9:00 am - 4:00 pm CST
    Online

    NF Midwest, Texas NF, NF Northeast, and The Littlest Tumor Foundation present an online day of learning for the NF...

  • January 2022

  • Thu 27

    NF Power Hour – ABLE Accounts

    January 27, 2022 | 7:00 pm - 8:00 pm CST

    Join us as Rosemary Laudani, Manager of Illinois ABLE, explains the benefits of ABLE (“Achieving a Better Life Experience”) accounts...

  • March 2022

  • Thu 10

    Parent Group Meeting

    March 10, 2022 | 8:00 pm - 9:00 pm CST
    Online

    If you're a parent of a child with neurofibromatosis type 1, type 2, or schwannomatosis you're welcome to join our...

  • Tue 22

    Webinar: Learn About Camp New Friends

    March 22, 2022 | 5:30 pm - 6:30 pm CDT
    Online

    Register for the Event

  • July 2022

  • Sun 10

    Camp New Friends 2022

    July 10, 2022 - July 16, 2022
    Blue Ridge School 273 Mayo Drive, St. George, VA, United States

    July 10-July 16, 2022 for all July 8-July 16, 2022 for teens (optional) Register and learn more at www.brainycamps.com/camps/neurofibromatosis.html. NF...

  • December 2022

  • Thu 8

    Discussion About Social Skills & Executive Functioning (Monthly Parent’s Group)

    December 8, 2022 | 8:00 pm - 9:00 pm CST
    Online

    Register or Join Do you have kids with NF1, NF2-SWN, or Schwannomatosis? Whether they're grown or still young, join us...

  • January 2023

  • Mon 2

    NF Young Adult Leadership Program

    January 2, 2023 | 8:00 am - January 6, 2023 | 5:00 pm CST

    Are you a young adult living with NF and want to make a difference in your community? In addition to...

  • Tue 17

    Information Session about Classrooms That Care

    January 17, 2023 | 6:00 pm - 7:00 pm CST

    Classrooms that Care is a service-learning program that teaches students and/or educational staff about neurofibromatosis (NF) and allied disorders through...

  • July 2023

  • Thu 27

    Free NF1 Plexiform Neurofibroma Educational Virtual Event

    July 27, 2023 | 6:00 pm - 7:00 pm PDT
    Virtual

    VIEW FLYER           REGISTER

  • August 2023

  • Tue 1

    Walk4NF End of Summer Virtual Challenge

    August 1, 2023 - September 30, 2023
    Virtual

    Take the Walk4NF Challenge. Walk 25/50/100 miles for NF by September 30th. Earn a 2023 Walk4NF T-Shirt and other appreciation...

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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.

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