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Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

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“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
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“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
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“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
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Educational Events

Name: NF1 PN Educational Event/Living With NF1 PN: How to Be Your Child’s Advocate.
Start: 2024-03-28T19:00:00-05:00
End: 2024-03-28T20:00:00-05:00

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0 events 25 0 events, 25	0 events 26 0 events, 26	0 events 27 0 events, 27	1 event 28 1 event, 28 7:00 pm - 8:00 pm NF1 PN Educational Event/Living With NF1 PN: How to Be Your Child’s Advocate. March 28, 2024 \| 7:00 pm - 8:00 pm CDT NF1 PN Educational Event/Living With NF1 PN: How to Be Your Child’s Advocate. Gain a new perspective on caring for a child with NF1 PN from this presentation by Regina Zambrano, MD. Learn... Free	0 events 29 0 events, 29	0 events 30 0 events, 30	0 events 31 0 events, 31

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March 28

March 28, 2024 | 7:00 pm - 8:00 pm CDT

NF1 PN Educational Event/Living With NF1 PN: How to Be Your Child’s Advocate.

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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

Calendar of Events

1 event 28

1 event, 28

NF1 PN Educational Event/Living With NF1 PN: How to Be Your Child’s Advocate.

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