43 Years of Care and Ensuring No One Fights Alone!

Study on Tumor Visibility


This is a virtual, paid study looking for participants with NF1 who have visible plexiform or cutaneous neurofibromas. This study hopes to further research by validating measures of visibility for clinical trials.

Participate in 60-90 a minute interview or focus group discussion.

The study team wants to enroll participants from diverse racial and ethnic backgrounds, including underrepresented groups.

You will be paid for your time!

Requirements:

  • Age 8 or older
  • Diagnosed with NF1 or have a child with NF1
  • Have access to a device with internet
  • Be able to read and communicate in English

For any questions, contact Dr. Staci Martin Peron

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