Evaluation of Acceptance and Commitment Training (ACT) - Neurofibromatosis Midwest

43 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

Home
Research Studies and Trials
NF1 Research Studies and Trials
Evaluation of Acceptance and Commitment Training (ACT)

Evaluation of Acceptance and Commitment Training (ACT)

NIH/National Cancer Institute | 2026
By Dr. Staci Martin Peron

Remote research study developed by Dr. Staci Martin Peron at the National Cancer Institute in Bethesda, MD. The study is evaluating Acceptance and Commitment Training (ACT), which has been found effective in helping parents of individuals with other chronic conditions.

The intervention involves 4 virtual sessions over 8 weeks. The study doesn’t include a drug or medication.

Fathers, mothers, and other caregivers of all racial and ethnic backgrounds are encouraged to participate.

The entire study will be virtual, so no travel is required. Compensation for participating in the study will be provided.

Requirements:

18 years or older
Caregiver/parent of a child with a RASopathy Diagnosis (such as NF1, Noonan Syndrome, Costello Syndrome, or other)
Experiencing parenting stress
Interested in receiving support virtually

Please contact:

Jayla Melvin, MLIS or Dr. Milly Curlee for more information

ACT Evaluation Study Download

<< Search Our Articles

Great Non Profits Badge

Candid Gold Seal of Transparency 2025

Donate

© 2026 Neurofibromatosis Midwest - non profit 501(c)(t3). Site Map - Privacy Policy
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.