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Global Genes Alliance RARE Toolkits
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MedlinePlus.gov
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https://siblingsupport.org/
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Children's Tumor Foundation
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Center for Medicare and Medicaid Services
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www.emilyperlkingsley.com
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www.nfcalifornia.org
Or mission: Create a community of support for individuals affected by Neurofibromatosis and their families, through education, patient advocacy, collations,…
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www.nfnetwork.org
Our Mission: “Is to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, providing outreach through education…
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