NIH/National Cancer Institute
| 2026
By Dr. Staci Martin Peron
Remote research study developed by Dr. Staci Martin Peron at the National Cancer Institute in Bethesda, MD. The study is…
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NIH/National Cancer Institute
| 2026
By Dr. Staci Martin Peron
This is a virtual, paid study looking for participants with NF1 who have visible plexiform or cutaneous neurofibromas. The goal…
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National Institutes of Health (NCI)
| 2025
Recruiting for children (8+ years), adolescents, and adults with NF1 and plexiform neurofibromas (pNFs) for a research study to complete…
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Johns Hopkins Comprehensive NF Center
Researchers at Johns Hopkins and around the world are investigating ways to slow the growth of NF-related tumors and prevent…
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Massachusetts's General Hospital
| 2024
If you or your child has NF1, and you don’t go to an NF Clinic Network Clinic (NFCN) or have…
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Stanford Ophthalmology, Children's Hospital of Philadelphia and Gilbert Family Foundation
| 2024
This study is seeking to learn how different eye tests and devices can help understand vision in patients with NF1,…
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Dana-Farber/Boston Children's
| 2024
The Neurofibromatosis Type 1 Tumor Early Detection (NF1-TED) study will determine whether a blood test can detect malignant peripheral nerve…
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NFlection Therapeutics
| 2023
Phase two trial is done. A phase three trial may open soon. Latest update.
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Ann & Robert H. Luries Childrens Hospital of Chicago
| 2023
By Carlos Prada, MD
Recruiting NF1 individuals with known Plexiform Neurofibromas
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John Hopkins Medicine
| 2023
By Carlos Romo, MD
Children and teens 19 years and younger.Adults 40 years and over.
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