Research brings promise to the future! Awareness brings hope now!
You can become an activist and help raise awareness for NF. We have included here some tools to help. You may also contact the office about other ways to raise awareness.
For NF Midwest, raising awareness means educating the public and helping them to care.
Most people don’t know much about neurofibromatosis (NF). Those who don’t always understand the incredible challenges of NF and the needs of people with NF.
One step towards easing the challenges of those with neurofibromatosis and schwannomatosis is to increase the understanding and support from the public. For that, the public needs to know that neurofibromatosis exists, understand how awful it can be, know how they can help, and want to make a difference.
You can become an activist and help raise awareness for NF. We have included below are some tools to help. You may also contact the office about other ways to raise awareness.
NF Midwest staff, supporters and patients are often visible at professional and public events. These may be medical meetings, local festivals, other non-profit events and more.
We also reach out to the media to publicize events, news or stories.
NF Midwest has developed material for people to hand out to the public. This includes brochures, business cards and special cards for people who are so affected that they may find someone starting at them,
We also have shirts, stickers, wristbands and more.
Awareness ShopNF Midwest shares personal stories through the media, our website and social media. We also provide the means for people to share their stories with others and develop social media posts for sharing.
Everyone has a story about how NF has impacted their lives. It may be that you have a child with NF or schwannomatosis; you may be affected; you may have seen the struggles of a friend; or maybe you just passed someone who has NF at a grocery store.
If you share that story on social media, through email, or in a conversation with friends, then you raise awareness.
You can take it a giant step further by creating a fundraising and awareness page. Contact us on how to accomplish this.
How to Set-Up Firstgiving
Learn everything you can about NF1, NF2 and schwannomatosis and teach the world. Be knowledgeable and iNFormed.
You can start by checking out our Learn section and signing up for updates under Contact Us. Be sure to check back frequently for new articles and iNFormation.
Look for webinars, symposiums and other educational opportunities to help make you a true ambassador for the cause.
Learn About NF
Wear the word on your body, your car, your wrist, your laptop…where ever you can. Hand out information about NF whenever you can,
Help the world to see it and recognize it. We have merchandise available at our store that includes clothing, wristband as well as business cards and brochure.
We are always looking for new and creative ways to spread the word. Let us know your ideas!
Awareness Store
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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.
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