NF Registry
If you or your child has been diagnosed with neurofibromatosis (NF) please join the NF Registry today. The key to…
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Check out past blogs and news!
If you or your child has been diagnosed with neurofibromatosis (NF) please join the NF Registry today. The key to…
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Indiana University is conducting a NF1 quality of life study. This study will help us to better understand how NF1…
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The Washington University Neurofibromatosis (NF) Center has launched a unique internet-based NF1 Registry, which is a 30-minute questionnaire. This questionnaire…
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In 2012 House Research Institute will sponsor a three-year, Phase II clinical trial, evaluating the efficacy of the drug RAD001…
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The University of Wisconsin Milwaukee Dept. of Psychology (Bonnie Klein-Tasman, Ph.D.) is collaborating with the University of Chicago NF Program…
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If you have Type 1 Neurofibromatosis with Plexiform Neurofibromas you may be interested in NF1 Plexiform treatment studies for children…
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The University of Chicago Neurofibromatosis Program (Dr. Tonsgard), and the NF Center at Washington University, St. Louis (Dr. Gutmann) along…
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NF Midwest is proud to have a group of energetic members that are running for the NF cause. Help our…
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This year there are at least 6 opportunities in the Midwest to put your best foot forward and raise awareness…
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