News/Blog

be iNFormed – Applying for Disability Benefits with Neurofibromatosis

Posted By NF Midwest | On August 27th, 2013

We have a new be iNFormed article that was written for us by Ram Meyyappan from Social Security Disability Help. This…

Posted By NF Midwest | On August 21st, 2013

The Genetics Division at the Faculty of Medicine and Health Sciences from Université de Sherbrooke in Québec has opened a…

Posted By NF Midwest | On August 16th, 2013

During specific times of the year your workplace may offer you the opportunity to participate in charitable giving through the…

Posted By NF Midwest | On August 13th, 2013

In June, Barbra Levine, the executive director NF Mid-Atlantic, recorded a discussion with Amanda Bergner,MS, CGC from Johns Hopkins Comprehensive…

Posted By NF Midwest | On August 7th, 2013

We are very excited to have a special speaker scheduled for 2013 NF Family Symposium coming up on Saturday, October…

Posted By NF Midwest | On July 31st, 2013

Webinar Recording The Neurofibromatosis Network presented this webinar on aging in neurofibromatosis type 1 in June of 2012. The speaker…

Posted By NF Midwest | On July 25th, 2013

Contributed by Lisa Laing As a disease, Neurofibromatosis carries a large number of symptoms which greatly affect sufferers. Type one (NF…

Posted By NF Midwest | On July 24th, 2013

In June of 2013, NF Network presented a captioned webinar “The Genetics of NF2”, presented by renowned UK Geneticist, Dr….

Posted By NF Midwest | On July 19th, 2013

A video released in January 2013 by the Congressionally Directed Medical Research Program (CDRMP) highlights the work of Dr. Karen Cichowski,…