
Letters Needed for New Code for Mass Removal of NF Tumors
We have an URGENT request of anyone who is affected by multiple tumors from neurofibromatosis or has a loved one…
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We have an URGENT request of anyone who is affected by multiple tumors from neurofibromatosis or has a loved one…
Read MoreIrma (Toni) Napolilli, who passed away in September 2012 at the age of 94, and her husband, Francis, who preceded…
Read MoreNF Midwest is excited to have another NF clinic to add to the region. This one is through the University…
Read MoreNF Midwest is excited to announce that we have a new clinic for neurofibromatosis now open in the Loyola University Health…
Read MoreHaving one of the neurofibromatoses (NF1, NF2, Schwannomatosis) is a lifelong challenge. Building a foundation of strength and knowledge; and…
Read MoreOn February 10th and 11th, NF Midwest executive director Diana Haberkamp and others will be the visiting congressional offices of…
Read MoreMany years ago when my children were young someone sent me this essay by Emily Perl Kingsley, the mother of…
Read MoreOur hearts are heavy at the loss of Marcy Perlman on December 6, 2013. Marcy was a true NF fighter…
Read MoreOne of the presentations at NF Midwest’s annual family symposium held on October 12, 2013, was by Amanda Bergner from…
Read MoreMembers of NF Midwest’s Central Missouri Group succeeded in getting fantastic article written about neurofibromatosis in the Columbia Daily Tribune. The…
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