Meet Steve – Doin’ It 4NF
Steve R. was diagnosed with neurofibromatosis type 2 later in life and completely lost his hearing at age 55 after 3…
Read More
Check out past blogs and news!
Steve R. was diagnosed with neurofibromatosis type 2 later in life and completely lost his hearing at age 55 after 3…
Read More
WARNING THIS MAY BE DIFFICULT TO READ. A few weeks ago we shared the story of Ina, an older woman…
Read MoreIn the fall of 2008, Giovan’s Restaurant and Pizzeria in Crest Hill held their 3rd annual Ravioli Eating Contest to benefit…
Read More
Thanks to all that ran in the 1st annual Great Steps 4NF 5K run. You all did great! Here are…
Read More
Both Sides of NF My name is Ina. I am 65 and was born with NF. Because my case is…
Read More
It can be challenging to gather information from enough people for neurofibromatosis type 1 research. Having a large number of…
Read More
Members of NF Midwest, NF Northeast and Texas NF visited Cold Spring Harbor laboratory in New York in the…
Read More
We have some Great Steps 4NF teams that are really making a difference for neurofibromatosis by using Firstgiving.com/nf as a…
Read More
It’s “Throwback Thursday” and Great Steps 4NF season! So today we honor those who had the Great Steps 4NF vision…
Read More
Join the many others who are participating in our monthly giving circle by signing up for automatic monthly donations of…
Read More
© 2025 Neurofibromatosis Midwest - non profit 501(c)(t3). Site Map - Privacy Policy
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.